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Engaging And Retaining Patients In Long-Term Observational Studies

Executive Summary

Success of long-term observational research studies depends on retaining participants; patient drop-out can lead to loss of vital data including endpoints. Study design considerations and direct-to-patient engagement strategies can help pharmas improve retention and compliance.

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In today’s health care environment, where the volume and complexity of clinical information continues to increase for a range of stakeholders, research sponsors must understand how clinical trials, prospective observational research or registries, and retrospective data are used, what the costs are, and what a combined approach will look like. They must prepare for a more comprehensive and efficient research paradigm that provides payors, providers, and policy makers with the requisite data to make coverage and treatment decisions.

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