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Post-Treatment Lyme Disease: The Forgotten Fifth

Executive Summary

Up to 20% of patients experience lingering symptoms following treatment for Lyme disease. A look at efforts underway to raise the profile of post-treatment Lyme disease syndrome as a legitimate disease.

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Though vastly underreported, new cases of Lyme in the US total more than 300,000 a year; its incidence now exceeds infections for far more visible conditions like HIV. A higher profile for Lyme is hobbled by a slow and distorted institutional response, especially among clinicians who disagree on whether Lyme is one disease or a complex constellation of many – much like cancer, but without the commitment.

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